Abstract Objective: To investigate the social support level and its influencial factors in patients with systemic lupus erythematosus (SLE), and to develop the management strategies for chronic disease.
Methods: Patients with SLE were investigated by Social Support Rating Scale (SSRS), Patient Health Questionnaire (PHQ-9), Generalized Anxiety Disorder (GAD-7), 36-Item Short-Form Health Survey (SF-36) and Visual Analogue Scale (VAS) of fatigue. The demographic and clinical data of SLE patients were recorded. SLE disease activity and damage severity were assessed by SLE Disease Activity Index (SLEDAI) and SLE Damage Index (SDI), respectively. Influencial factors for social support were analyzed.
Results: A total of 246 patients were included. Social support scores for these patients were 40.76±7.93 and the scores showed no significant difference with the national norm (P>0.05). Patients who were younger than 18, single, unemployed or damaged by disease showed lower level of social support (P<0.05). Compared with the high social support group, patients in the low social support group experienced more severe depression or anxiety, and scored lower on mental component summary scale (vitality, social functioning, emotional role and mental health perception) and physical role of SF-36 (P<0.05).
Conclusion: Social support levels for patients with SLE are closely related to the quality of life, and influenced by age, marital status, professional condition, and disease damage. Health education for patients and their families should be strengthened in chronic disease management to enhance social support and finally, improve their quality of life.
Fund:This work was supported by the National Natural Science Foundation (81771766, 81771765, 81373206, 81401357, 81671622, 81701621, 81671621), National Key Research and Development Program (2016YFC0903900), Research Projects of Hunan Provincial Health and Family Planning Commission (B201701), and Clinical Research Foundation of Xiangya Hospital of Central South University (2014L10), China.
XU Qianyun,LIU Di,ZENG Furong等. Social support and management strategies for chronic disease in patients with systemic lupus erythematosus[J]. Journal of Central South University(Medical Scienc, 2019, 44(1): 67-73.